Welcome to the Action on Gilbert’s Syndrome website. We’re here to bring you the latest up to date info on Gilbert’s Syndrome in an easy to access site. If you want updates on our progress just go sign up on the right! =>
You can also follow us on twitter for alerts on the latest posts and news at @GilbertsSyndrom
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Action on Gilbert’s Syndrome has been in existence since 2003. At that time the website held information collated from other websites and published medical research, and anecdotal information from people who got in touch. After several years the site went into a fallow period due to other priorities in my life! This year it is being re-launched with updated information, and in a new format. Twitter and Facebook functions will also be included. As the site develops news will be sent out via an email update. I hope to keep you updated as the site progresses and additional information is forthcoming.
One in 20 people may have Gilbert’s Syndrome (or possibly more), but only one in three of those will be aware of it, and less than one in three will have any symptoms at all. Most people who have it are men. Sometimes called Gilbert’s Disease, it is not in fact a disease.
Most Doctors use standard reference information that tells them to tell you that Gilbert’s Syndrome is harmless. However, information from scientific studies illustrates that you may experience a number of symptoms, including the most common one of jaundice, and that you need to be aware of certain chemicals, including prescription medication, that you are less able to cope with.
This website offers those with Gilbert’s Syndrome, and their family and friends, as well as the medical profession, further information from published scientific research and shared information from hundreds and thousands of individuals who have Gilbert’s Syndrome.
I hope it helps us all live better with Gilbert’s Syndrome.
Adina
It is so refreshing to read information on a website which mirrors what I have experienced since being diagnosed with GS following the long hot summer of 1976. I read the NHS website which is absolutely useless and helps me understand my GP’s attitude to the condition. When I next go to see my GP because I feel dreadful for no apparent reason, I shall go armed with the information gleaned from Action on Gilbert’s Syndrome as many of the symptoms I was suffering from recently were on your symptoms list, which my doctor diagnosed as a virus. It was only through my suggestion that, when she said she wanted me to have a blood test, she added a test for liver function. I had pointed out to her that I had been going through a great deal of stress recently and knew that that can upset the liver. Unfortunately I had not been on your website prior to my appointment, but it is patently obvious she knows nothing about GS. I appreciate that there is no treatment for the GS, but I shall now be careful about what I am prescribed for the symptoms. Thank you for this.
I like the helpful information you provide on your articles. I?ll bookmark your weblog and check again right here frequently. I’m reasonably sure I?ll be told many new stuff proper here! Best of luck for the following!
Hi there, thanks for the comment, as you can read on the site (click here) hormones can trigger Gilbert’s Syndrome symptoms, the menopause in women being a key lifestage trigger.
I would appreciate any info and help regarding GS and nausea. Is there a connection
between GS and the action of the gallbladder? I wake up in the morning really nauseated and it occurs within a range of one hour. I’ve tried sitting up and sleeping what I can and the nausea stays away. I’ve had no pain from the gallbladder and nothing I eat make me sick like the usual problem gallblladder causes. After I eat the
the nausea goes away or at least decreases in a couple of hours. I’ve had tests of my liver, pancreas, upper GI, a colonoscopy and found nothing wrong. I do have small gall stones though. Any help including medication to try would be appreciated.
Hi re. the gall bladder, here’s a useful insight from some research: 25% of those with gallstones had Gilbert’s Syndrome, while only 3% of those without did. 15% of the stones were bilirubin stones, and most of the cholesterol stones had a bilirubin center, meaning that it acted as a trigger for gallstone initiation. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd=Retrieve&dopt=Abstract&list_uids=6253364&query_hl=7&itool=pubmed_DocSum
interesting! There are medications for nausea, do ask your Dr. best Adina