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helping people with Gilbert's Syndrome |
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latest: Due to life circumstances we are not currently offering memberships, phone contact or postal contact. If you need to get in touch, and cannot find the help you want on the pages of this site then please send an email to help@gilbertssyndrome.org.uk. Unfortunately I cannot guarantee you will get a response - but I will do my best. Wishing you well, August 2008. PAST NEWSLETTERS NOW AVAILABLE
FOR FREE - due to popular demand. Many articles on everything from
itching, to GS and young people, GS and ME etc. Click on link for newsletters
in menu above. Sep 2008.
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| Who are we and what do we want to do? | Action on Gilbert's Syndrome want to do 3 things: |
Hello
there, I run this small but friendly organisation working solely for people
experiencing Gilbert’s Syndrome, and for no profit. I've gathered
this information painstakingly from years of searching, and some is necessarily
anecdotal. I'm not medically qualified, and it’s not meant to be
a definitive guide to how to deal with Gilbert’s Syndrome, because one
of the problems we are set up to overcome is the lack of information and
support on this subject. |
• help support people with GS through
information and sharing stories,
• plus get more healthcare professionals understanding the real challenges of GS and how they can keep us all better prepared for life with the condition, • and to develop the research and understanding of what it is, does and how it can be treated and managed. |